Umm, yes, I can.
Well I’m glad that’s over with! You may or may not know, Sarai was supposed
to be admitted into the hospital for an EEG last Sunday in Hackensack, NJ. Mom came down to watch Caleb...
I took a few
days off from work, we were all set… and they had no room to take her. Not on Monday either… or Tuesday. Wednesday they called and said to get her
there in an hour. I ran out of school,
literally running, threw everything in the car as fast as I could and
high-tailed it down to NJ.
This was a dreaded (DREADED) appointment. I didn’t want to hear that she was having
seizures, that they would want to give her medication, vitals every 4 hours,
bad food… I thought it was all overkill.
PLUS, when we got down there I realized the only bra I had packed was
the one I was wearing! Not good. Thank goodness it was a good one. When you’re in the hospital with your child
you need all the support you can get.
It was a rough couple days, but we’re glad it was only a
couple days. Sarai isn’t having
seizures, but she IS having abnormal brain activity, “spikes,” and sometimes
LOTS of them (like, one per second at times when she’s sleeping). We were totally against medication, but we
caved, and I think it’s the right decision.
We emailed Dr. Escolar to get her opinion and she felt that we should
try it, they all suggested Keppra, so that’s what she’s on. It could cause some mood changes, or it could
actually help her learn or be more relaxed if the spikes calm down. (Prayers, please!)
Nerve racking. There
are no right answers. It just kills
me. The talk with the neurologist went
something like,
“We don’t know what the spikes mean. It could mean she’s going to have seizures,
it could not. It might be holding her
back cognitively, maybe not. Maybe she’s
uncomfortable, we don’t just know. There
is no literature to say giving medication will prevent seizures, but I think
there’s something to it. Maybe, no one
can say for sure, it’s worth a try.”
Conversations like this one are what make me SCREAM at the TV when I
watch Grey’s Anatomy, a show where everyone has an answer, and doctors are
willing to go the extra mile and think outside the box. The writers on those shows are pretty
creative.
(Should she get a break from doing PT just because she's in the hospital...
not a chance!)
I do have to say, Hackensack Hospital totally rocked. The nurses were great, Child Life came and
set up mats for Sarai to play on the floor, they gave us finger paints, we all
kept busy. Of course the iPad was never
far.
Caleb stayed with Yvonne, thank goodness we knew he was well
taken care of (probably spoiled out of his mind!).
Sitting is going well, for both of the kids…
(Face off!)
And you might have seen Caleb’s perfect plank on facebook…
This kid could have taught the “correct alignment” section
of my group fitness certification class.
We’ll have more EEG’s to come for Sarai, we’re starting the
intense physical therapy program for 3 weeks in March, and we’re hoping to take
her to Pittsburgh in April to meet with Dr. Escolar and have an MRI (she hasn’t
had one in over a year and a half).
Busy, busy.
(Mall rat!)
Anyone know how to move a giant swing set?? Take it apart, put it back together and
create a playtime wonderland in our backyard?
Uncle Tom and Aunt Theresa have one we could have, but I have no idea
how to tackle a project like that.
Back to business as usual for us! Love you guys!
RSS Feed (xml)