Sunday, March 25, 2012

“And so if by tonight, the bar closes, and you feel like falling down…”

What a whirlwind few months we’ve had!! I don’t even know where to begin. 
Sarai just finished her three week program at Leaps and Bounds. They call it “intense physical therapy,” and boy let me tell you… it was INTENSE!! Adam took her every day all the way to Queens for this. She is stronger, more flexible, and totally RIPPED. Her abs could make Mike “the Situation” jealous, and this jumping move will have her “jersey turnpiking” with Snookie before she knows what hit her.


video
(And this honestly doesn't show you how much she loved jumping,
it was the only part of the program she really liked.) 

We’ll have a lot of work to do to keep this flexibility and strength.  I’ve been in the process of trying to get her some PT at a facility once a week so we’ll have access to some of their cool equipment.  So, add that to the list of therapies; that would put little miss Sarai up to 13 therapies a week!  I’m tired just thinking about it.  Zzzzzzzzzz….. 


 I'm glad we're back to business as usual.
Both Sarai and Caleb are getting stronger each day.  I really think they’re in a competition against each other.  Sarai sees Caleb head to the stairs…

 … she heads for the stairs.
Caleb sees Sarai pull to stand…
… he pulls to stand.
And then there are the sit-offs…
I love it!
Sarai will be beginning preschool this summer, and I’m pretty nervous about it.  Her evaluation begins this week and we’ll meet the first week in May to decide how long she’ll go for, what therapies she’ll have, if she’ll have an aide.  We’ll see.  Yvonne (ever the angel) has been very flexible and will be helping out in a BIG way to get Sarai to her appointments.  Yvonne, you’re the best!
Yvonne is also awesome because she joined our team “Tough Little Peanut” and is walking with us to support the March of Dimes.  Last time we walked we raised just over $1000!  So I set my goal high, and am hoping we can meet that again.  Today is CP Awareness Day!  Make a $10 donation to our team, support the March of Dimes and help to end premature birth! 
Click and donate.  I’ll get off my soapbox (for now)…
And just because we can never stop when it comes to our girl… we found yet another program we will probably look in to for her.  A parent of a child attending Leaps and Bounds suggested it to Adam, said it was AMAZING and gave him a card.  The treatment is called “neurological reorganization,” and it’s all about stimulating the brain by bringing it back to the beginning stages of development.  The stimulation happens through different movements which directly stimulate the cerebral cortex, beginning with army crawling.  I sat in on a teleconference with the guy who runs the program (in MA) and am pretty interested.  Adam spoke to him Friday night.  I think it’s just another thing where we say, “What if??  What if this is the thing??”  It would mean cancelling our trip to see Dr. Escolar in PA over spring break, but I think that right now, a trip to  MA would give us more information, and more strategies.  It sounds like it’s going to be a LOT of work, that they’ll want her diet changed, our cleaners and laundry detergents changed all natural… it sounds like a lot.  I’m overwhelmed just thinking about it.  But, like everything, how can we say no?  Who can say no to this smile?
So we have a trip, several doctors’ appointments, evaluations, meetings, PT eval, regular therapies, a march for babies, the always present fight with insurance companies, and visiting preschools all in the next month.  My plate is FULL FULL FULL.  Keep  your fingers crossed that we’ll make it through April!