“Mamma mia, now I really know, my my, I could never let you go!”

Hi everyone! I hope all you mom’s out there had a terrific Mother’s Day! My first Mother’s Day was great! My mom and Katie came out and we had such a nice weekend. We shopped, had a delicious roast beef dinner and went out to breakfast Mother’s Day morning. And, as always, we had a ton of laughs! Like this conversation…

Adam: I’ll go get some sheets.
Mom: Adam’s going to go take a sheet. (When Adam comes back…) Are they clean?
Adam: Yes.
Mom: So you think your sheet don’t stink?
Adam: I think there’s 3 sheets on this bed now…
Katie: So what are you? 3 sheets to the wind? I’d give one to mom, but I don’t give a sheet.

Hilarious.

I had been begging, BEGGING, Adam to get me tickets to see a Broadway musical. I’ve been dying to see Promises, Promises because Kristen Chenoweth is in it and Kristen Chenoweth is to me what Hannah Montana is to every 2nd grade girl in America. So Saturday night Adam surprised me with tickets to…. A Mets game. Ok, Ok, I tried SO hard to be grateful, just happy that we’d spend a day together and we don’t get a lot of days like that. But let’s face it, I was more than a little crushed. Then, to my total surprise, on Sunday morning, there he is holding Sarai who is holding an envelope for me… with tickets to Promises, Promises! We go Friday night, and I’ll bet that Thursday night I won’t be able to sleep! (Side note: We did go to the Met game on Sunday and had a great time. We almost froze our buns off, but they played a good game and the new stadium is so cool.)

Sarai on Sabril is going really well. We had an appointment with Dr. James last week and he was VERY happy with how well she’s doing. He said, “I’m very pleased with her progress, and I expect that she’s just going to get better and better.” Good news from him is really GOOD NEWS. We are still struggling like crazy with her vision. She’s doing a great job exploring with her hands but still really isn’t attending to much with her eyes. I’m putting puffy paint and Velcro on her plastic toys to give them different textures. Dr. James is still optimistic that her vision could get better, maybe after the ACTH is totally stopped. That will be another couple weeks. Fingers crossed!

So I’ve been wondering about Cerebral Palsy. They told us when Sarai was first diagnosed with PVL that that was our biggest worry. I asked the doctor about it last week and he said, basically, no one is even going to discuss that until we’re totally out of the woods with the spasms. But I have to say, and I know Sarai is pretty delayed, but she doesn’t have many characteristics of a baby with CP. Her movements are symmetrical, she grabs anything you put in her hands with both hands and when she’s on her tummy she’s trying so hard to crawl. Maybe these are my rose-colored-glasses talking, and I know my glasses can be pretty rosy, but I’m just sayin’…

We keep just taking things a day at a time. She’s growing and learning. She started eating “puffs,” the first food she’s had to chew and she’s chewing like a pro. She’s cooing like crazy, and we’re still waiting for a first tooth.

Again, hope all you mom’s out there had a great Mother’s Day! Being a mom certainly gives me a new appreciation for the job! A special Happy Mother’s Day to my cousin Jeff’s wife, Beth. They had their first baby girl 3 days before Mother’s Day, Addison. She’s just beautiful, and we can’t wait to meet her!