Friday, January 20, 2012

"When I see your face, there's not a thing that I would change!"

TGIF!  Just in time for Saturday, we're getting 7 inches of snow.  It just.... isn't.... right!  ONE snow day this school year so far and it was in SEPTEMBER!! 

Any-hoo, just thought I'd let you guys know what's going on these days.  Sarai had an evaluation for a three week intensive therapy program, and she rocked it.  And they gave us some great ideas to help her get stronger.  We've been working really hard on some new things; standing with splints, sitting with sandbags for support...

... and without!  Her progress sitting has been AMAZING. 

We've got the poor kid doing (usually) 60 sit-ups a day, she can't help but (reluctantly) get stronger!  The therapy will be in March, and we're pretty stoked.

The yucky EEG news follow-up... we're headed to Hackensack Hospital on Sunday for a "24-Hour" EEG.  It will be 1-3 days.  I'm going to assume that it will be at least 3 days.  As Adam says, this ain't our first rodeo, we kind of know what to expect.  Our doctor seems to think nothing of walking into a room, waving his hand, saying, "One more day," and walking out.  This is going to be a rough few days.  Last time Sarai had this done it was grueling, so think of her now bigger, stronger, and resistant as ever.  At 12 months old this kid could get out of a gauze head wrap like no other...

Aug. 2010
Within a few hours of being wrapped up...

Houdini's got nothing on this kid.  We'll let you know how this all turns out.  I've been in contact with Dr. Escolar (formerly from UNC, now at the children's hospital in Pittsburgh), and we're pretty ready for a second opinion from her and her team.  I'll probably be in touch with them next week to let them know what they're saying the EEG says.

Caleb turned 6 months old!  He's sitting better too. 

And smiley as ever.


Sorry to end this on a sad note, but I've got to mention that two tiny kids, two VERY brave little souls, that I've been praying for and following their blogs, passed away last weekend.  Rest in peace Gracie and Tripp, and I'm continuing to pray that your families will be able to find comfort in knowing that you're not suffering any longer. 

We'll keep you guys updated about what happens next week at the hospital.  Fingers crossed!  Say some prayers please (for Gracie and Tripp's families too!)!


6 comments:

  1. Hey you guys will be 3 minutes away from us. You guys are welcome to crash or what ever. Please let us know and we will be happy to accomodate

    ReplyDelete
    Replies
    1. Thanks John, but we have to stay in the hospital with Sarai (one of us does anyway). But you're more than welcome to visit! I'll be super stir crazy!

      Delete
  2. Hi,if you can have visitors...let me know. I can stop by Hackensack Hospital and spend sometime with you.
    Be glad to help out.
    Luv
    Aunt Theresa

    ReplyDelete
    Replies
    1. Thanks Aunt Theresa! We may need to give you a call!

      Delete
  3. Don't hesitate...

    ReplyDelete
  4. Sarai looks so good when she is sitting up. Happy and proud. You and Adam work so hard. Good luck with the EEG. Thank you for your prayers for Gracie and her family.
    Love,
    Aunt Kathy

    ReplyDelete