Friday, March 19, 2010

“Let’s get it poppin’! I’m in Miama trick!”


No… wait… I’m not in Miami…. I’m STILL IN THE HOSPITAL! Sarai’s blood work this morning showed that Sarai has a rather high white blood cell count (average is between 7-13, hers is 28.5). They’re doing some tests to make sure she doesn’t have an infection and making us wait here for the results, until Sunday. Shoot…. Darn…. Geez….D’OH! Can a girl get a break??

On the brighter side of things, our tough little peanut had her 24 hour EEG the other day and it shows great improvement. Still has abnormalities, but the neurologist said he’s “delighted!” He said the best response ever reported on the ACTH has been within 24-48 hours, and he’s hardly ever seen that. Some kids take up to 4 weeks to respond, some don’t respond to the medication at all. She was spasm free by the 4th day, he said the best we could really hope for. So that sets a good standard that her EEG will just get better and better…. We hope! She's been cranky, but a little more like herself. She's been smiling a little! Ah, I missed that.

When we leave, we’ll be giving Sarai one shot a day, and taking her blood pressure and checking her glucose daily. Her first appointment with her neurologist for follow-up is this Tuesday, and he’ll be in charge of adjusting the dose and monitoring once we’re home. I hope he’ll have a nice, long talk with Dr. James so they’re both on the same page.

Well, here we sit.

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