March 4, 2010

Hi everyone. You know they told us when we were in the NICU with Sarai that having a preemie is always 2 steps forward, 1 step back. We’re experiencing a step back right now, so I thought I’d update you all on what’s going on.

A couple weeks ago I noticed Sarai wasn’t as smiley or cooing nearly as much. Her therapists said it could be teething, a growth spurt, or a cold coming on. A couple days ago I also noticed her clenching her body, then releasing, as if she were constipated (which she was). She doesn’t change color, had no fever, didn’t lose consciousness, I didn’t think anything of it. But after doing some research, it seemed that there might be much more to this clenching.

We came to the hospital Wednesday night, we’re back at Westchester in the pediatric unit. They did a head ultrasound today that showed improvement with the PVL (which we already knew). They also did an EEG, which shows some abnormal activity. We’re waiting for them to now start a 24 hour EEG (which could go many hours beyond) any time now. That will give a much better indication about what’s going on. So we’ll see what it says. It looks like we’re going to leave here on some anti-seizure medication.

We’re very comfortable in our room here. Each room in the pediatric unit has a little pull out couch and a bathroom with a shower. Adam and I both stayed last night and we’ll both be here again tonight. Adam’s supposed to work tomorrow, so we’ll take it one day at a time.

Just when we think we’re starting to understand what we’re dealing with…. I don’t even know what to think.

I know you’ll keep us in your thoughts and prayers. We need it…