“In my life, I love you more!”

Hi everyone. Are you getting a big dose of spring like we are?! I’m loving it. It puts a little pep in my step. I even got out tonight for a yoga class. But enough about me….

Sarai is doing much better. She seems to be over the pneumonia, and is now on a higher level of topamax. She’s having no side effects, and Adam and I both think it’s pretty much stopped any of the leftover spasms. We go see Dr. James on Thursday, we’ll see what he says. I feel so much pressure to have to identify any spasm/seizure activity that she has, and I don’t really know what I’m looking for. I know what they look like, but sometimes it’s nothing. How do I know what is what? It’s scary.

Sarai was evaluated by the vision therapist, and she will soon begin vision therapy 2x/week. The therapist, Joanne, said that right now, her vision seems pretty poor. She said to be careful to not move her too quickly, don’t let people pick her up fast, ease her into everything, because we don’t know what she can see and what she can’t; it can be frightening for her. Another therapist was telling me that her grandson had a vision delay when he was an infant. He visited an ophthalmologist (like we did) who said his eye was fine (like we heard) and to give him time because he was in a range where his vision was ok for now (same news we got). They then went to an optometrist, and they don’t look at the structure of the eye, but at how functional the vision actually is. They fitted the little guy for glasses at 6 months and he’s doing really well. So I said, forget this ophthalmologist guy, we need an optometrist! We have an appointment in two weeks.

Anyone else listen to Rosie Radio on XM? I do almost everyday. I love her. Everyday she talks about something I can relate to. Today was a little more close than usual. She was talking about having children with disabilities. She began reading this poem, Welcome to Holland. I’ve read it before on my friend, Brandie’s blog. It’s a perfect metaphor for what it’s like to have a child with special needs. Check it out here.

Rosie also had on a woman, Kelle Hampton, who is mom to baby girl, born just 11 weeks ago, with Down Syndrome. Her blog puts mine to absolute shame. I read it today and just cried. If you’ve got a box of tissues handy, read the birth story of her daughter, Nella….

I’m going to start following her. She’s an amazing writer, her pictures are amazing, her strength is inspiring. It just gives me chills. Read um, and weap.

I almost forgot, my friend Nate and his wife Kristia welcomed a beautiful baby girl into the world on the 11th! Can't wait to meet you Isabella!