“Said woman take it slow, it’ll work itself out fine. All we need is just a little patience.”

Hi guys! Did you end up reading any of Kelle Hampton’s blog? I’m totally addicted to it. I am just amazed by the way she can put her feelings into words, and I share so many of them. I’m not so good about sharing all of what I’m feeling through this blog, I’m not comfortable being so… naked. Anyway, I’ve been enjoying that lately.

If you haven’t heard already, we spent the past couple days back in good ol’ Westchester Children’s Hospital. We had a check up with Dr. James on Thursday and he noticed that Sarai was breathing very rapidly (though not labored) and had high blood pressure. He thought we should head over to the hospital and make sure her heart wasn’t being affected by the ACTH (a common side effect of steroids). She had an EKG and another echocardiogram. The echocardiogram showed a TINY bit of thickening in the heart walls (totally reversible after the ACTH is stopped), but it’s not enough to be concerned with. She had a 24 hour EEG that still shows improvement over the last one, but she is still having some spasms. Dr. James said, “It’s a little like finding a needle in a haystack,” meaning, she’s not having many.

So we’ve started weaning her off the ACTH, a little scary because it’s really helping her. We’ll lower it again next week. They also started her on another round of antibiotics because she’s got this pesky white count that just won’t come down and they’re not totally sure why.

Dr. James told us that the ACTH would probably make Sarai put on some weight, but this is ridiculous! She’s starting to look like a juiced-up Jason Giambi! (Although I’m sure the grand jury will be more understanding in Sarai’s case.) I think she’s put on 4-5 lbs. As Billy Fuccillo would say, “She’s huuuuuuuuuuuuuuuuuuuuuuuuuuuu-gh!”