"Red beans and rice, I could eat a plate twice. So nice. So nice. So nice."

Posted Aug 26, 2009 7:22pm
Well, our week is starting to wind down.

The MRI that Sarai was supposed to get this morning was cancelled because the machine was down. The MRI is with a doctor at the University of North Carolina who is doing a study. I’ll write more about it after we get the MRI and I know more, but I know they are the only ones doing this kind of MRI in the country. We’ll meet with their neurologist at 9:30am, and have to be back for the MRI at 4:30. Kind of a bummer for our scheduling, but I’m glad to be able to do it at all.

We met with the neurologist at Duke today. He did a quick evaluation. He was optimistic about Sarai’s future. He said if Sarai has any difficulties they would be more motor related, most likely a delay in when she’ll walk, and that the PVL shouldn’t affect her cognitively. He encouraged us to stimulate her as much as we can, keep doing massage (which I try to do daily) and be sure to follow up with early intervention. He said the best results for kids who get the stem cell transplants is with the kids who are physically and emotionally stimulated. He said the more we talk to her the better; she definitely has a head start there!

We made it to the book store at Duke today and got to drive around campus a little. What a BEAUTIFUL campus! Adam said it’s what he thought Harvard would look like. I’m sure Sarai will really enjoy going to college there. : )

We made Mexican lasagna and rice and beans for dinner at Cindy’s house. YUM! Tomorrow will probably be a long day, and then we’ll be headed home before we know it! After tomorrow I’ll probably take a little break from the blog for a couple days because Friday we won’t get home until probably midnight. But I’ll let you know how tomorrow goes. Love you all! Thanks for all your prayers!